Vikki Entwistle Publications 2005 - 2009

Section 1: Research and Academic Audiences

Peer Reviewed Publications

1.     Collins, S., Drew, P., Watt, I. S., & Entwistle, VA. 2005, "'Unilateral' and 'Bilateral' practitioner approaches to decision making.", Social Science and Medicine, vol. 61(12), pp. 2611-2675.

2.     Entwistle, VA., Mello, MM., & Brennan, TA. 2005, "Advising patients about patient safety: Current initiatives risk shifting responsibility.", Joint Commission Journal on Quality and Patient Safety, vol. 31, pp. 483-494.

3.     Smith, PA., Entwistle, VA., & Nuttall, N. 2005, "Patients' experiences with partial dentures: a qualitative study.", Gerodontology, vol. 22, pp. 187-192.

4.     Bugge, C., Entwistle, VA., & Watt, I. S. 2006, "Information that is not exchanged during consultations: significance for decision-making.", Social Science and Medicine, vol. 63, pp. 2065-2078.

5.     Calnan, M., Rowe, R., & Entwistle, VA. 2006, "Trust relations in health care: an agenda for future research", Journal of Health Organization and Management, vol. 20, pp. 477-484.

6.     Elwyn, G., O'Connor, A., Stacey, D., Volk, R., Edwards, A., Coulter, A., Thomson, R., Barratt, A., Barry, M., Bernstein, S., Butow, P., Clarke, A., Entwistle, VA., Feldman-Stewart, D., Holmes-Rovner, M., Llewellyn-Thomas, H., Moumjid, N., Mulley, A., Ruland, C., Sepucha, K., Sykes, A., Whelan, T., & on behalf of the International Patient Decision Aids Standards (IPDAS) Collaboration 2006, "Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.", British Medical Journal, vol. 333, p. 417.

7.     Entwistle, VA., Williams, B., Skea, Z., MacLennan, G., & Bhattacharya, S. 2006, "Which surgical decisions should patients participate in? Reflections on women's recollections of discussions about different types of hysterectomy.", Social Science and Medicine, vol. 62, pp. 499-509.

8.     Entwistle, VA. & Watt, I. S. 2006, "Patient involvement in treatment decision making: the case for a broader conceptual framework.", Patient Education and Counselling, vol. 63, no. (3), pp. 268-278.

9.     Entwistle, VA. & Quick, O. 2006, "Trust in the context of patient safety problems.", Journal of Health Organization and Management, vol. 2006, no. 20, pp. 397-416.

10.     Langston, A., Robertson, C., Johnston, M., Entwistle, VA., Marteau, T., McCallum, M., & Ralston, S. 2006, "Protocol for Stage 1 of the GaP Study (Genetic Testing Acceptability for Pagets Disease of Bone): An Interview Study about Genetic Testing and Preventative Treatment: Would relatives of people with Pagets disease want testing and treatment if they were available?", BMC Health Services Research, vol. 6, p. 71.

11.     McDonald, A., Knight, R., Campbell, MC., Entwistle, VA., Grant, AM., Cook, JA., Elborne, DR., Francis, D., Garcia, J., Roberts, I., & Snowdon, S. 2006, "What influences recruitment to randomised control trials? A review of trails funded by two UK funding organisations.", Trials, vol. 7, p. 9.

12.     Snowdon, S., Elbourne, DR., Garcia, J., Campbell, MK., Entwistle, VA., Francis, D., Grant, AM., Knight, RC., McDonald, AM., & Roberts, I. 2006, "Financial considerations in the conduct of multicentre randomised controlled trials: evidence from a qualitative study", Trials, vol. 7, no. (1), p. 34.

13.     Campbell, MK., Snowdon, C., Francis, D., Elbourne, DR., McDonald, AM., Knight, R., Entwistle, V., Garcia, J., Roberts, I., & Grant, AM. 2007, "Recruitment to randomized trials: strategies for recruitment and enrolment and participation study (The STEPS study)", Health Technology Assessment, vol. 11, no. 48.

14.     Entwistle, VA. 2007, "Differing perspectives on patient involvement in patient safety", Quality and Safety in Health Care 2007, vol. 16, pp. 82-83.

15.     Entwistle, VA. 2007, "Considering 'balance' in information (Editorial)", Health Expectations, vol. 10, pp. 307-308.

16.     Entwistle, VA. 2007, "Alternative perspectives on patient involvement in patient safety", Quality and Safety in Health Care no. 16, pp. 82-83.

17.     Francis, D., Roberts, I., Elbourne, DR., Shakur, H., Knight, RC., Garcia, J., Snowdon, C., Entwistle, V., McDonald, AM., Grant, AM., & Campbell, MK. 2007, "Marketing and clinical trials: a case study",  Trials, vol. 8, no. 37.

18.     O'Connor, AM., Bennet, C., Stacey, D., Barry, MJ., Col, N., Eden, K., Entwistle, V., Fiset, V., Holmes-Rovner, M., Khangura, S., Llewellyn-Thomas, H., & Rovner, D. 2007, "Do patient decision aids meet effectiveness criteria of the International Patient Decision Aids Standards Collaboration?", Medical Decision Making, vol. 27, no. 5, pp. 554-574.

19.     Williams, B., Entwistle, V., & Haddow, G. Obliged to help?  Encouraging participation in observational and experimental studies. Social Science and Medicine . 2007. In Press

20.     Baldie, D., Entwistle, V., & Davey, P. 2008, "Exploring the information and support needs of patients self-managing community acquired pneumonia at home", BMC Pulmonary Medicine, vol. 8, no. 11.

21.     Entwistle, V. & Williams, B. Health literacy: the need to consider images as well as words. Health Expectations . 2008. In Press

22.     Entwistle, V. A., Carter, S. M., Trevena, L., Flitcroft, K., Irwig, L., McCaffery, K., & Salkeld, G. Communication about screening:  a new proposed direction. British Medical Journal . 2008.  In Press

23.     Entwistle, VA., Prior, M., Skea, ZC., & Francis, J. 2008, "Involvement in decision-making: a qualitative investigation of its meaning for people with diabetes", Social Science and Medicine, vol. 66, pp. 362-375.

24.     Entwistle, VA. 2008, "Offering Choices (Editorial)", Health Expectations, vol. 11, no. 1, pp. 1-2.

25.     Entwistle, VA., Calnan, M., & Dieppe, P. Consumer involvement in health services research agenda setting: the MRC Health Services Research Collaboration's contribution and the persistent questions of value. Journal of Health Services Research and Policy . 2008.  In Press

26.     Entwistle, VA. & Williams, B. 2008, "Health literacy: the need to consider images as well as words (Editorial)", Health Expectations, vol. 11, no. 2, pp. 98-100.

27.     Langston, A., Johnston, M., Francis, J., Robertson, C., Campbell, M., Entwistle, V. A., Marteau, T., MacLennan, G., Weinman, J., McCallum, M., Miedzybrodzka, Z., Charnock, K., & Ralston, S. 2008, "Protocol for stage 2 of the GaP study (genetic testing acceptability for Paget's diasease of the bone): a questionnaire study to investigate whether relatives of people with Paget's disease would accept genetic testing and preventive treatment if they were available", BMC Health Services Research, vol. 8, no. 116.

28.     Ryan, M., Watson, V., & Entwistle, V. 2008, "Rationalising the 'irrational': a think aloud study of discrete choice experiment responses", Health Economics.

29.     Skea, Z. C., Entwistle, V. A., Russell, EM., & Watt, I. S. 'Avoiding harm to others' considerations in parental MMR vaccination discussions. Social Science and Medicine . 2008.  In Press

30.     Williams, B., Entwistle, V., Haddow, G., & Wells, M. 2008, "Promoting Research Participation: A response to Craig Fry's commentary", Social Science and Medicine, vol. 66, pp. 1461-1462.

31.     Williams, B., Entwistle, V., Haddow, G., & Wells, M. 2008, "Promoting research participation:  why not advertise altruism?", Social Science and Medicine, vol. 66, pp. 1451-1456.

32.        Entwistle, VA., 2008, “Supporting participation in clinical research: decision aids for trial recruitment? (Editorial)”, Health Expectations, vol. 11(3), pp. 205-207.

33.        Potter, BK., Avard, D., Graham, I., Entwistle, V., Caulfield, T. Chakraborty, P., Kennedy, C., McGuire CG., Griener, GG., Montgomery, M., Wells, GA., Wilson, BJ., 2008, “Guidance for considering ethical, legal and social issues in health technology assessment:  application to genetic screening”, International Journal for Technology Assessment in Health Care, vol. 24(4), pp. 412-422.

34.        Greenway, J., Dieppe, P., Entwistle, V., Ter Meulen, R., 2008, “’Facing the Future’: what is the government’s real agenda for health visitors?”, Community Practitioner, vol. 81, pp 29-32.

35.        Entwistle, VA., 2008, “Hurtful comments are harmful comments:  respectful communication is not just an optional extra in healthcare (Editorial)”, Health Expectations, vol. 11, pp 319-320.

36.     Potter, B., Avard, D., Entwistle, V., Kennedy, C., Chakraborty, P., McGuire, M., & Wilson, B. 2009, "Ethical, legal and social issues in health technology assessment for prenatal/preconceptional and newborn screening:  a workshop report.", Public Health Genomics no. 12, pp. 4-10.

Book Chapters

1.     Entwistle, VA. 2005, "Involving service users in health services research," in Handbook of health services research methods: investigation, measurement and analysis., A. Bowling & S. Ebrahim, eds., Open University Press, Milton Keynes, pp. 535-554.

2.     Entwistle, VA. & Hanley, B. 2006, "Involving the public.," in Oxford Handbook of Public Health.  2nd Ed., D. Pencheon et al., eds., Oxford University Press, Oxford.

3.     Entwistle, V. A. 2008, "Patient involvement in decision making: the importance of a broad conceptualisation," in Shared decision making in health care:  achieving evidence based patient choice, A. Edwards & G. Elwyn, eds., Oxford University Press.

4.     Watt, I. S. & Entwistle, VA. 2008, "Sharing decisions with patients," in Decision making for nurses, C. Thompson & D. Dowding, eds., Open University Press.

Presentations

1.     Barratt, A., Edwards, A., Entwistle, VA., & Pignone, M. 2005, "Plenary debate: Shared decision making is only relevant for privilege groups.", in 3rd International Shared Decision Making Conference., at Ottawa, Canada.

2.     Entwistle, VA. 2005, "Patient Safety: patients' perspectives and potential contributions.  Clinical Epidemiology Rounds.", in Ottawa Health Research Institute., at University of Ottawa.

3.     Entwistle, VA. 2005, "Patients' roles in patient safety initiatives.", in Quality and Patient Relations/Risk Management Seminar., at Ottawa Civic Hospital.  Canada.

4.     Entwistle, VA. 2005, "Trust in the context of patient safety problems.", in MRC HSRC workshop: researching trust relations in health care: conceptual and methodological challenges., at Bristol.

5.     Entwistle, VA. & Watt, I. S. 2005, ""It's more than talk about treatment options": a broader conceptualisation of patient involvement in decision making.", in 3rd International Shared Decision Making Conference., at Ottawa, Canada.

6.     Entwistle, VA. 2005, "Patients' roles in patient safety initiatives.", in STEP Seminar., at University of Sydney.

7.     McLeer, S., Entwistle, VA., & Campbell, M. 2005, "Factors impacting on patient participation to a randomised controlled trial.", in Society for Social Medicine Annual Scientific Meeting., at Glasgow, Scotland.

8.     Skea, A., Entwistle, VA., Watt, I. S., & Russell, EM. 2005, "Parents talking about the MMR vaccine: analysis of an Internet discussion forum.", in Society for Social Medicine Annual Scientific Meeting., at Glasgow.

9.     McCann, S., Entwistle, VA., & Campbell, MC. 2006, "Factors affecting patient participation in a randomised controlled trial: a qualitative investigation.", in Society for Clinical Trials, at Orlando, Florida.

10.     Bennet, C., O'Connor, A., Stacey, D., Barry, M., Col, N., Eden, K., Entwistle, VA., Fiset, V., Holmes-Rovner, M., & Khangura, S. 30 May-1June 2007, "Does the addition of 25 new trials to the Cochrane review of patient decision aids change the bottom line results? (poster)", in 4th International Conference on Shared Decision Making, at Freiburg.

11.     Charles, C., Gafni, A., Entwistle, VA., & Butow, P. 30 May-1 June 2007, "Conceptual issues in the design, development and evaluation of decision aids. (Symposium)", in 4th International Conference on Shared Decision Making, at Freiburg.

12.     Entwistle, V. A. 2007, "Involving patients in decision-making: beyond information and choice", in School of Psychology Colloquium, at University of Sydney, Australia.

13.     Entwistle, V. A. 2007, "When and why is choice important in screening?", in Screening and Test Evaluation Programme Seminar Series, at University of Sydney, Australia.

14.     Entwistle, VA. 31 January 2007, "Support for self care: evidence and values", in University of York Department of Health Sciences Seminar Series, at York.

15.     Entwistle, VA. 27 June 2007, "Participatory research: who are we kidding?", in Participatory research: who are we kidding?, at University of Southampton.

16.     Entwistle, VA., Prior, M., Francis, J., & Skea, Z. 30 May-1 June 2007, "What does involvement mean to people with diabetes?", in 4th International Conference on Shared Decision Making, at Freiburg.

17.     Entwistle, VA. 28 June 2006, "Researching patient involvement in decision-making (Plenary)", in University of Dundee School of Nursing and Midwifery Postgraduate Student Conference, at Dundee.

18.     Fearn, P., Watson, M., Entwistle, VA., Bond, C., & Johnston, M. 6 September 2007, "Consumers' beliefs about non-prescription medicines and providing information during consultations for their purchase", in British Pharmaceutical Conference, at Manchester.

19.     McCann, S., Entwistle, VA., & Campbell, M. 13-15 July 2006, "Embedding qualitative methods in a randomised controlled trial", in 7th Interdisclipinary Conference on Advances in Qualitative Methods, at Surfers Paradise, Australia.

20.     Potter, B., Wilson, B., Avard, D., Caulfield, T., Chakraborty, P., Entwistle, VA., Graham, I., Griener, G., Kennedey, C., McGuire, M., Montgomery, M., & Wells, G. 17-20 June 2007, "Approaches to assessing ethical, legal and social issues in health technology assessments: application to prenatal and newborn screening (Poster)", in Health Technology Assessment International, at Barcelona.

21.     Potter, B., Wilson, B., Avard, D., Caulfield, T., Chakraborty, P., Entwistle, V. A., Graham, I., Griener, G., Kennedy, C., McGuire, M., Montgomery, M., & Wells, G. 2007, "Guidance for incorporating ethical, legal and social issues into health technology assessments in genetic screening: an environmental scan (Poster)", in Medical Decision Making, at Pittsburgh, USA.

22.     Entwistle, V. A. 2008, "Health services research and the changing norms of healthcare relationships", in HSRU 20th Anniversary Conference - Making a difference in healthcare: 20 years of health services research, at Aberdeen, UK.

23.     Entwistle, VA. 2007, "GP's views of what matters for health care quality", in School of Public Health Seminar Series, at University of Sydney, Australia.

24.     Fearn, P., Watson, M., Entwistle, V. A., Bond, C., Johnston, M., & Lee, A. J. 15/04/2008 2008, "Why don't consumers want to give more information to pharmacy staff?", in Health Services Research and Pharmacy Practice Conference, at Liverpool, UK.

25.     France, E. F., Wyke, S., Hunt, K., Ziebland, S., & Entwistle, V. 05/06/2008 2008, "Patients' ue of personal experience in health decision making", in Health Services Research Network "Developing Better Health Services" Conference, at Manchester, UK.

26.     France, E. F., Wyke, S., Hunt, K., Ziebland, S., & Entwistle, V. 06/09/2008 2008, "Patients' use of personal experience in antenatal decision making - The interaction between experiential and professional knowledge", in The British Sociologial Association Medical Sociology Group 40th Annual Conference, at Brighton, UK.

27.     France, E. F., Wyke, S., Hunt, K., Ziebland, S., & Entwistle, V. 24/04/2008 2008, "Patients' use of personal experience (experiential knowledge) in health decision making", in Alliance for Self Care Research Seminar, at Carnoustie, UK.

28.     France, E. F., Wyke, S., Hunt, K., Ziebland, S., & Entwistle, V. 2008, "The interaction between personal experience and professional knowledge in health decision making", in Research Unit in Health, Behaviour and Change, at University of Edinburgh, UK.

29.     Franics, J. J., Johnston, M., Robertson, C., MacLennan, G., Weinman, J., Marteau, T., Entwistle, V., Campbell, MK., McCallum, M., Ralston, S., & Langston, A. 30/08/2008 2008, "Theorising, measuring and predicting 'acceptability' of genetic screening and preventive treatment: a study of relatives of people affected by Paget's disease of the bone.", in 10th International Congress of Behavioural Medicine, at Tokyo, Japan.

30.     Johnston, M., Franics, J. J., MacLennan, G., Robertson, C., Weinman, J., Entwistle, V., Campbell, MK., McCallum, M., Ralston, S., & Langston, A. 30/08/2008 2008, "Are people's illness perceptions related to their affected relatives' experiences of an illness? A study using the CS-SRM and the ICF model of health outcomes", in 10th International Congress of Behavioural Medicine, at Tokyo, Japan.

Section 2:  Clinical, Management and Policy Audiences

Article Publications

1.     McKee, L., Anton, S., Entwistle, V. A., Farrar, S., & Harrison, S. H. Issues in assessing public involvement. Research Matters [36], 2-3. 2007.  Chief Scientist Office.

Presentations

1.     Entwistle, VA. 2006, "Informing patients about risk and involving them in efforts to improve their safety.", in 1st National Clinical Governance and Patient Safety Conference., at Airth Castle, Stirlingshire.

2.     Baldie, D., Entwistle, VA., & Davey, P. 20 November  2006, "Exploring the support and information needs of patients with community acquired pneumonia", in Scottish National Audit Project - Community Acquired Pneumonia (SNAP-CAP), National Launch Meeting, at Royal College of Physicians, Edinburgh.

3.     Entwistle, VA. 31 October 2006, "Patient Involvement and Patient Safety", in National Patient Safety Agency Seminar Series, at London.

4.     Entwistle, V. A. 2008, "Measuring patient satisfaction", in British Geriatrics Society Spring Meeting 2008, at Glasgow, UK.

5.     Entwistle, V. A. 2008, "Alliance for Self Care Research:  an Update", in Scottish Government Health Department National Update on Current Initiatives for Long Term Conditions in Scotland, at Edinburgh.

Section 3:  All Audiences including Members of the Public and Service Users

Presentations

1.     Entwistle, VA. 2006, "Feedback about involvement in treatment decisions.", in Scottish Health Council Conference: Getting Patients' Views: are we listening, are we learning?, at Edinburgh.

2.     Prior, M., Entwistle, VA., Francis, J., & Skea, ZC. 2006, "What makes people with diabetes feel involved in decisions about their care? (poster).", in Enhancing Self Care - The Evidence Base, at Dundee, Scotland.

3.     Entwistle, VA. 9 May 2007, "Is that what service users think?", in 6th National SDO Conference, at London.

4.     Entwistle, VA. 2-4 May 2007, "Informing patients and improving safety: what's the connection?", in Annual NPSF Patient Safety Congress, at Washington DC.

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